Digdoug
Active member
There are a lot of new faces on here recently...welcome all!! I've been around about 3 years and read the posts on a daily basis to try and keep up with the prayer requests. I'm not very active recently since I have been very busy at a new job and trying to keep my head above water, so haven't done any serious digging lately.
I have a son who has a bone disorder that causes frequent fractures. Also, tumors have displaced the bone in his cheekbones, jaw and chin and require surgery, about once a year, to reduce the size of the tumors when they disfigure his face.
We met our new surgeon yesterday to schedule surgery and he wants to do 3 surgeries. The first to reduce the tumor in his cheekbones, the second in his lower right jaw and the third, tumor is pushing the pallet down inside his mouth. Hopefully, the first surgery will relieve the pressure and allow the tumor in the pallet to recede back up and eliminate the third surgery. We are waiting on insurance to approve it before we can schedule the first surgery.
We also are trying to get a new drug approved with our insurance that has been shown to increase bone density and reduce pain. He is only in pain when he fractures but hopefully it will strengthen the bones and reduce fractures.
On the way home in the car Brian said he hoped he would die during surgery so that he could go home and be whole. He said he would look for his uncle Terry who passed away a couple of years ago and would stay with him until we got there. It's hard to drive with tears in your eyes.
Here is a picture of Brian in the doctors office yesterday.
[attachment 39266 IMG_4835editirweb.jpg]
He didn't want his picture taken and tried to hide behind his book.
Click on the link at the bottom to see additional pictures.
Click on Brian's gallery and 3 additional galleries will pop up. Click on those galleries to open them to see the pictures. Click on the first pic and the click next to continue. Some pics have discriptions under them.
For the most part Brian is a happy go lucky 11 year old and he doesn't let this get him down much. He makes good grades at school and loves to pick on his older sister!! He loves the Lord and knows he will one day be whole. He just wants to run and play like a normal kid. "Dad, can you play football in Heaven?"
I'm sorry this is so long but I wanted to share some of our story with our new friends here and to beg your prayers for healing for my son.
Thank you so much!!
I have a son who has a bone disorder that causes frequent fractures. Also, tumors have displaced the bone in his cheekbones, jaw and chin and require surgery, about once a year, to reduce the size of the tumors when they disfigure his face.
We met our new surgeon yesterday to schedule surgery and he wants to do 3 surgeries. The first to reduce the tumor in his cheekbones, the second in his lower right jaw and the third, tumor is pushing the pallet down inside his mouth. Hopefully, the first surgery will relieve the pressure and allow the tumor in the pallet to recede back up and eliminate the third surgery. We are waiting on insurance to approve it before we can schedule the first surgery.
We also are trying to get a new drug approved with our insurance that has been shown to increase bone density and reduce pain. He is only in pain when he fractures but hopefully it will strengthen the bones and reduce fractures.
On the way home in the car Brian said he hoped he would die during surgery so that he could go home and be whole. He said he would look for his uncle Terry who passed away a couple of years ago and would stay with him until we got there. It's hard to drive with tears in your eyes.
Here is a picture of Brian in the doctors office yesterday.
[attachment 39266 IMG_4835editirweb.jpg]
He didn't want his picture taken and tried to hide behind his book.
Click on the link at the bottom to see additional pictures.
Click on Brian's gallery and 3 additional galleries will pop up. Click on those galleries to open them to see the pictures. Click on the first pic and the click next to continue. Some pics have discriptions under them.
For the most part Brian is a happy go lucky 11 year old and he doesn't let this get him down much. He makes good grades at school and loves to pick on his older sister!! He loves the Lord and knows he will one day be whole. He just wants to run and play like a normal kid. "Dad, can you play football in Heaven?"
I'm sorry this is so long but I wanted to share some of our story with our new friends here and to beg your prayers for healing for my son.
Thank you so much!!
