Just wanted to let you know...

[Digdoug]

...that we met with a hospice care nurse for Brian today. The tumor has attached itself to his vertebrae in his neck and is impossible to remove. The plastic surgeon talked with us privately when they released us from the hospital and she said she was surprised that Brian lived to see 2011. She said he has anywhere from a day to a year, that it is in God's hands.

I don't want to post this on the Carepage right now. Although Brian knows he is on a do not resuscitate (DNR) list since September 2009, he isn't aware about what is going in with his neck. He doesn't read the Carepages. He has been on a care program through Children's Hospital since 2009 because a hospice wasn't available for minors until recently.

So, just wanted you guys to know how serious things have become and that we appreciate your thoughts and prayers.

God bless,

Doug

 

[dirtdigginlady]

Doug I am very sorry to hear this. You all have just been a part of my heart ever since I heard about you on this forum. We all know that God is able. He is able to do miracles. He does them every day. He is also able to give us peace that passes all understanding when he doesn't choose to do a miracle. I lost a sister years ago. She was 29 years old and suddenly faced a terrible tradegy. She was in ICU and I prayed for a miracle. The nurses gave us a key to a room where we could have some privacy. I went to that room alone and I got on my knees and I prayed for a miracle because I knew God could give us one. While I was on my knees, God spoke to me and said...."She is going to die but everything is going to be all right." That is NOT what I wanted to hear but a peace came over me that the world just can't give. The Lord then spoke to me the scripture " From the end of the earth will I cry unto thee, when my heart is overwhelmed: lead me to the rock [that] is higher than I." That doesn't mean that I wasn't upset, I was in a world of pain and suffering but I still had a peace that passed all natural understanding. She left us the next day. I read a story once that has just stuck with me for years and years. It was about a woman who had been very sick for a long time. She had fought and fought the illness and it seemed that God had defied all odds and kept her going for much longer than she should have lived. One day her pastor came to visit her and she said to him.........."Pastor you have taught me how to live and you have done it well.......now you need to teach me how to die." I think this is something that as Christians who believe in God and miracles we sometimes fail in. We fail to be able to teach people how to accept death and dying. God is in control and my love and prayers are with you. theresa kelly

 

[Pete in MI]

n/t

 

[Greg from Mi.]

Doug, Brian and the rest of your family ( sorry cant remember there names)
I've been praying for Brian for a few years ever since I 1st found out about Brains issues. I Will be continuing to pray for him and you.
Greg

 

[SeniorSeeker]

Doug, Brian will continue to be in my prayers. May God's will be done in his life and yours.

 

[Greg from Mi.]

That spoke to me also
Greg

 

[Mike from MI "Iron Brigade"]

n/t

 

[Mike from MI "Iron Brigade"]

I pray for Brian almost every day and sometimes many times per day. He has touched many lives here, mine included. I remember the first time I came down and we all went geocaching. Sure was fun! Then a few years later when my daughter and I stopped in Knoxville and had breakfast with you and Brian.
You guys are family to me and the prayers will continue.
God bless your family.

 

[4EverHis102399]

and thank you, Doug, for giving us an update. We look for updates often for Brian, and pray for good, uplifting reports, but that is not always meant to be. We pray for Wisdom for you and Carol and you struggle to find the right things to say to Brian right now. God will give you the words and the strength to do what needs to be done. Praying now more than ever!

 

[DK]

Doug, Brian, and all of you are family to us here. God is in control. God will give Brian and your family the strength and peace to get through this. God is still in the healing business.

 

[7centsworth]

Yall all mean alot to us and you will always be in our prayers.

 

[Mike Chgo area]

n/t

 

[seeker41]

just prayed that god will miraculously heal Brian!!!!!!!!

 

[BARKER]

n/t

 

[RickIowa2009]

Prayer, Prayer, Prayer!

 

[Digdoug]

...for all of your words of comfort and for your thoughts and prayers. Brian has been in a lot of pain in his face since we have been home and is miserable. They doubled the doses of his pain meds and it doesn't seem to help much. We go back Wednesday for his follow-up visit with the plastic surgeon.

Thursday and Friday we worked out the details for home hospice care and a nurse will visit twice a week. They will be a huge help if the tumor on his spine (neck) begins to cause paralysis.

Thanks again!!

Doug

 

[Anonymous]

Amen to Theresa's post as it is really good and Doug I want you to know that my prayers are with Brian and family as always and I prayed for him and each of you this morning before reading this and for others who need much prayer, also! None of us know what we will have to face in this earthly life, but with Jesus we can endure and get through whatever happens with the peace and comforting love of Jesus! God may not answer our prayers the way we want Him to do, but He does know what is best for Brian and for each of us! I pray for Jesus to touch Brian with His wonderful love and ease his pain and if he has to leave this world then may his transition from earth to heaven be made easy and quick! I know your hearts are aching with what has already happened amd are facing rough and difficult decisioins to be able to tell Brian what is happening to him! Please prepare him to accept what has to be whether it is continued life on earth or his spirit leaving his body and ascending back to God Who gave him life! Help him to understand that God has given him more years through His love for Brian than the medical persons ever thought he would have but only through the prayers of the righteous saints! God does do miracles but like Theresa said in her post He doesn't always do that but He will give us peace that passes any human understanding, even though each grieves for those we love and want them with us forever! May God Bless and give you all the peace that you need to accept what has to be! Love you all in Christ Jesus! Amen! Ma & Gamma Betty